Hello friends of the kidney line. We usually call me Aunt Wen. I am 57 years old this year. I am a dialysis kidney friend at the Blood Purification Center of Guangdong Provincial Hospital of Integrated Traditional Chinese and Western Medicine. This year has ushered in the 19th year of dialysis.
As a kidney friend with the longest dialysis time in our center, my dialysis experience is often used by the medical staff and medical social work in the department as a typical example to encourage new dialysis or those who are about to face dialysis. The patient is actively facing the treatment.
Don’t look at me thin and small, I can usually take care of my granddaughter and take care of my 80-year-old mother▽
< p data-mid="" mpa-is-content="t">2003
In 2003, a sudden A cold has changed my life ever since.
At that time, I had a cold for a while, and I was treated in a community hospital. The doctor in the community hospital always diagnosed it as “pelvic inflammatory disease“, but it became more serious later. So much so that I would spit out a little water, and I was once issued a critical illness notice, judging that I only had two months to live.
But my family didn’t give up on me. Seeing how uncomfortable I was, they insisted on taking me to Nanhai Hospital of Traditional Chinese Medicine for treatment，< span>It was initially diagnosed with uremia at that time! I didn’t know anything about this disease at the time, and my family was afraid that I would not be able to accept it for a while, so they chose to keep my temporary condition a secret and didn’t tell me the truth.
Later, when I clearly knew that I was suffering from uremia, I needed long-term dialysis treatment, and I felt a huge difference in my heart. It was unacceptable for a while. At that time, I told my family that I would choose dialysis and would rather choose to leave! But in the end, under the efforts of my brother and husband to save it, I still accepted it.
Don’t look at my compliance now. In the half year I just started dialysis, I am actually like many kidney friends. There is still a strong sense of luck, always fantasizing that one day I can return to my previous life without long-term treatment. Therefore, this led me to think that my condition was stable for a while, so I did not listen to the doctor’s persuasion and stopped the dialysis treatment without authorization. During those 8 months, I searched for doctors everywhere, looking for traditional Chinese medicine for treatment.
In the beginning, the creatinine index decreased a little. It seemed to be a little curative, but it became more and more uncomfortable.Later I understood , the remedies can not cure my kidney disease, there is no shortcut to take, and finally obediently returned to the hemodialysis center to receive dialysis treatment.
2015
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In 2015, I once again walked through the gates of hell, that year I underwent parathyroidectomy.
The parathyroid glands seriously affected my bones, and the pain in the bones made me unable to walk normally. I also silently choose the way of the worldAll right.
Later, with the introduction of my doctor, I learned that a parathyroidectomy could permanently free me from bone pain, but I might face greater surgical risks.
I hesitated for a long time, and my own brother tried to persuade me not to undergo surgery. He just hoped that I could “live”, but in my opinion, such a “live” “It was torture. I understand my brother’s position. As a brother, I have the responsibility to protect my sister, but this time I have to “go against” my brother’s ideas. After repeated discussions with my son-in-law, I finally accepted the surgery to remove the parathyroid glands. Give it a go.
Fortunately, with the blessing of God, the doctor took my life back from death again. I still remember waking up after anesthesia and seeing my family standing there. The scene next to my bed was extremely happy.
Headman Lu Minran of the department presented me the excellent “Kidney Fighter” certificate of honor of the hemodialysis center▽
Many times, new dialysis patients ask me how to insist on 19 years of treatment, and feel that 19 years is a long time. As a fellow traveler, I would like to share that:
according to From sex and state of mind!
I always listen to good doctors when I take medicine and live daily.
diet, first First of all, I still need to have three meals at regular intervals. I always eat 70% of each meal, I will eat more vegetables, and I will also add meat, but not too much, 1 to 2 taels Meat, only eat fresh food every day, insist on going to the market to buy fresh vegetables and meat.
Low oil and low salt will definitely be available.
I usually go for a walk. , look away.
In terms of compliance, I am doing very well. In the past, many patients’ health management advice for medical staff was usually “left ear in right ear out”, and lack of communication with medical staff and misunderstanding of medical staff, resulting in many missed opportunities for treatment. Taking blood pressure measurement as an example, the head nurse of the dialysis center often reminds us to pay attention to our blood pressure, and each person distributes a blood pressure book for us to go back and record. Many people do not care and do not insist on taking blood pressure three times a day, but I persevered, and whenever I had a blood pressure problem, I would ask the doctor, and then adjust the regimen.
Actually still bigFamily perception of dialysis management Knowing is not very good! I also often say to other patients, dialysis does not mean death, it is just a treatment, a way to prolong life! And now that science has developed for so many years, and dialysis technology has become more and more mature, we must trust medicine and medical staff even more.
Usually the medical staff and social worker girls of our hospital dialysis center often use my example and other new dialysis patients Talk about dialysis treatment.
Three times a week of dialysis can really make a big difference in life. Young people may not be able to go to work, but with the changes of the times, there are still peritoneal dialysis patients. I see that many young people also choose peritoneal dialysis and can also go to work.
I am grateful for my family, my husband, my daughter, and my brother during these 19 years.
My brother will always help me silently when I am in difficulty and despair. He supports me unconditionally, both mentally and financially. . So many times, I look back on the past 19 years.Persistence, most of it is due to my brother’s dedication to me.
It may also be because of this disease that I have seen the sacrifices of my family members, cherished my family members more, and cherished my own life more.
In the past 19 years, it is not long or short, if not for this disease, at that time, I was in the rising period of my career. I would probably be able to get a boss Reuse, have different life trajectories.
In retrospect, although I have regrets, I feel very lucky. Now I can’t see my daughter grow up and get married, hold grandchildren, share the joy of family life with my family, and be filial to the elderly at home!
So I am very grateful to my family, the medical staff, medical social workers and people around me who have helped me. Fortunately, I met them, and their persistence in the past 19 years also has their share.
In the past 19 years, I have also seen the comings and goings of many patients. Many times, I did not see a familiar patient for treatment one day. I will think that my patient may have left, and I will inevitably feel sad and afraid at the beginning. Will I be the next one, but think about it from another angle, I have survived so many difficulties all the way, and every day now is earned , and gradually get used to it.
In the past, I may have faced the disease by myself, and when I got on and off the plane, the center was deserted. I have more “human touch”, and sometimes I feel that I am not “fighting” alone. The center has gradually become a big family, and everyone helps each other. Now I have joined the Kidney Friends Association under the influence of social workers. Become a fellow dialysis volunteer and share his experience with new dialysis patients based on his own experience. Thinking back to when I first got sick, if I had the help of social workers and fellow travelers, I would have been more likely to accept the disease.
Finally, I would like to take this opportunity to share with all patients, develop good habits, do a good job in health management, strictly follow the doctor’s advice to control diet, maintain an optimistic attitude, and the disease will not be affected. It’s not scary, what’s scary is how you look at it and how you think about it.
In the end, I would like to share my experience with fellow travelers. This is what I often tell other patients.Life is like Like a lifeline, there are ups and downs before there is vitality. If there are no waves and it becomes a straight line, it is already the end!
Kidney on line
Thank you very much Your sincere story. To sum up, Aunt Wen herselfgood compliance, positive attitude, and the care of the family members and medical staff around her are the three points that make her able to survive the disease. After uremia, still laughing at the pillar of life.
As Aunt Wen said As mentioned above, there are still many people who do not know enough about dialysis, and always feel that uremia is the end of their lives. If at the beginning of the illness, if they can gain relevant scientific knowledge and the understanding and care of the people around them, kidney friends will not be so helpless!
So, I also hope that my partners can share this article with friends around me, so as to have a correct understanding of the final End Stage Renal Disease and Dialysis!
Pay attention to kidney online and take care of kidney health! ☟☟