War epidemic “love” | Mother asks for medicine for her 9-year-old son with severe epilepsy, and a love relay begins

On April 5th, the reporter contacted Ms. Gu, who lives in Chongming. Qiangmin Village, Xinhe Town. There are three kinds of medicines her child needs: levetiracetam, weiketai (perampanel), and debajin (sodium valproate oral solution), with a total price of more than 400 yuan.

According to Ms. Gu, her son is 9 years old and suffers from severe epilepsy. For 7 years, since the age of 2, he has been relying on drugs to suppress the onset of the disease. In the past two years, because she accidentally missed a dose of medicine and did not take it in time, her son developed symptoms of dyspnea and confusion, so he was urgently transferred to the hospital ICU for emergency treatment. It took more than a week of treatment before his condition stabilized.

“This time, my son must never stop taking the medicine.” Ms. Gu said that her Her son is treated in a tertiary hospital in Puxi all the year round. As early as the end of March, she realized that her son’s medicine was almost finished, but she lived in Chongming and had trouble traveling, so she asked her husband, who works in Baoshan District, to buy medicine. “In the past, he (husband) ) Every once in a while, we will prescribe medicines for our children, but as the epidemic situation is getting more and more serious, our express orders were once rejected. We have been worried that after the lockdown on the island, the medicines will not work The courier is here.”

From March 28th, Ms. Gu tried to use the Internet hospital platform On the prescription, I got the prescription for the first time. While waiting for the hospital’s medicine to be delivered, she also tried multiple online e-commerce platforms to buy medicine at her own expense. She calculated that the remaining medicines at home could only last until April 4, and at this time, the hospital in Puxi was still under lockdown.

She tried to post help information on various platforms such as Moments, WeChat groups, Douyin, etc. He also went to the local town committee and village committee for help, “At that time, I saw that a medical team was on the island to support the isolation point, and I wondered if I could find a member of the medical team I knew to help me bring medicine to the island, but Unfortunately, the medical team was already on the island at that time, and some people suggested that I change to other alternative medicines, but I have tried almost all the medicines on the market in the past 7 years and found that these three medicines are not effective for my son. It is the most effective, and I dare not change the dressing easily.”

“I am very grateful, When I sent out a request for help, I received a lot of loving help from all walks of life, including patients, doctors, nurses, village cadres on the island, and many unknown Shanghai citizens, etc. Everyone is helping me find a way.” Ms. Gu said that on April 3, she finally had hope.

A group owner of a hemophilia group Feng Gang saw this help message in the WeChat group. He, who lives in Chongming like Ms. Gu, paid special attention to this help message from this island. “At that time, I called the child’s mother according to the phone number in the picture for help, to verify the authenticity of the help and related needs, and she told me that ‘the medicine at home could only last until April 4th, after the drug was discontinued It will be life-threatening’, I immediately contacted a stone pharmacist I knew when I was working on hemophilia.” Feng Gang said.

< span>The full name of “Stone Pharmacist” mentioned by Feng Gang is Shi Zaihuan. He works in Zhongshan West Road, a pharmacy of Shanghai Pharma Cloud Health Yiyao Pharmacy. This is a DTP prescription that mainly sells new drugs, special drugs, and rare disease drugs. Contacting pharmacist Shi Zaihuan, she revealed: On April 3, when she received a call from Feng Gang, an old patient, because the need for medication was very urgent, she immediately consulted the leader of the unit, “I inquired about what this mother needs. These three kinds of medicines are not the regular medicines in our pharmacy, and there are no standing medicines in the pharmacy. However, considering that the child cannot wait for a moment when the medicine is in urgent need, I thought about whether it could be a special case and report to the superior group company. Apply for the transfer of medicines. “After more than 10 minutes, Shi Zaihuan waited for the good news. By applying for emergency supply from Shanghai Pharmaceutical Holding Group, the problem of drug supply was solved. The other party promised that the drug would be delivered to the pharmacy during the day on April 4. April 4 The medicine was officially delivered to the pharmacy at 11:00 am on Sunday. “During the epidemic, our pharmacy happened to have a car going back and forth between Pudong and Puxi every day to deliver medicine to some patients. On the same day, our pharmacy staff drove 90 kilometers, and after an hour and a half, the medicine was finally delivered to this mother at about 1 pm that day. “Shi Zaihuan told reporters, “We are also very pleased that we can really help patients. After receiving the medicine, Ms. Gu excitedly thanked the pharmacy staff: “Thank you so much!” The medicine at home can be maintained until April 4th, and what you sent is really life-saving medicine! ”

Medicine received by Ms. Gu

Ms. Gu also expressed her gratitude to Feng Gang, a caring person. “The outbreak in Shanghai is very violent, and we patients were caught off guard. Many of my patients are also seeking help from local governments, hospitals, and pharmacies, and most of them have received timely and effective help. As patients, we should go hand in hand, help each other, and spend the epidemic lockdown period together. safety of the city. ” said Feng Gang.