Photo courtesy of the First Affiliated Hospital of Xi’an Jiaotong University on the site of the free clinic
International Online Shaanxi News: February 28, 2022, is the 15th “International Rare Disease Day”. In order to help the general public better understand and prevent rare diseases and care for the rare patient group, on the morning of February 28, the First Affiliated Hospital of Xi’an Jiaotong University held a multidisciplinary joint free clinic for rare diseases. Patient questions and answers.
It is reported that rare diseases refer to diseases with low prevalence and rare occurrence. It is estimated that there are currently 20 million rare disease patients in China. Rare diseases often involve multiple organs and systems of the human body, and develop chronically, progressively, and exhaustively.
The doctor answers the patient’s questions for the photo courtesy of the First Affiliated Hospital of Xi’an Jiaotong University
Free clinic, early morning There was a long queue of incoming patients, ten from the Department of Cardiovascular Medicine, Pediatrics, Neurology, Hematology, Nephrology, Orthopedics, Endocrinology and Metabolism, Gastroenterology, Neurosurgery, Respiratory and Critical Care Medicine of the Second Affiliated Hospital of Xi’an Jiaotong University. Experts patiently answer patients’ questions and provide comprehensive diagnosis and treatment guidance and consulting services for difficult cases.
In order to further standardize the diagnosis and treatment of rare diseases, on the afternoon of February 28, the First Affiliated Hospital of Xi’an Jiaotong University held a rare disease multidisciplinary discussion event in the conference room, inviting the Department of Endocrinology and Metabolism, Department of Nephrology, Department of Hematology, Experts from rheumatology and immunology, medical imaging, pediatrics, orthopedics, and gastroenterology discussed a rare and difficult case. The whole event was broadcast live online, targeting the cooperative hospitals of the five northwestern provinces.
Photo courtesy of the medical workers participating in the free clinic. The First Affiliated Hospital of Xi’an Jiaotong University
Participated in this event Shi Bingyin, an expert from the Endocrinology and Metabolism Department of the First Affiliated Hospital of Xi’an Jiaotong University, said that the First Affiliated Hospital of Xi’an Jiaotong University has established a special rare disease expert group, and each department has established a special rare disease sub-specialty, and has done a lot in scientific research. Work. As the Northwest Collaborative Group of China Rare Disease Alliance and the leading unit of rare diseases in Shaanxi Province, the First Affiliated Hospital of Xi’an Jiaotong University hopes to work together with relevant hospitals and experts in the northwest region in the future to make due contributions to the treatment of rare disease patients in the northwest region.
Li Hongxia, deputy director of the Medical Department of the First Affiliated Hospital of Xi’an Jiaotong University, said that the multi-disciplinary joint free consultation for rare diseases is aimed at further improving the hospital’s ability to diagnose and treat rare diseases, popularize the knowledge of rare diseases, and improve the public’s awareness of rare diseases. Awareness of rare diseases. As the founding unit of the National Medical Center, the First Affiliated Hospital of Xi’an Jiaotong University regards rare disease management as an important part in the process of establishing the National Medical Center. To improve the rare disease diagnosis and treatment capabilities of hospitals, play the role of the leading hospital, promote cooperation within and outside the hospital, strengthen the standardized management of rare diseases, and improve the level of rare disease diagnosis and treatment in Shaanxi Province. (Wen Zhuman Zhang Li)