Dalian News Media Group reporter Chang Ting
A few days ago, Yangyang (pseudonym), who suffers from spinal muscular atrophy, was in the No. 1 Affiliated to Dalian Medical University. The neurology department of the hospital successfully completed the intrathecal injection of “Nosinagen Sodium”. It is understood that 20-year-old Yangyang became the first adult patient in Liaoning Province to be treated with the drug under the medical insurance policy.
Yangyang was diagnosed with Spinal Muscular Atrophy (SMA), a rare autosomal recessive disorder that causes hypotonia, delayed motor development, and Progression of the disease will further lead to abnormalities of the skeletal system, respiratory system, digestive system and other systems, which are seriously life-threatening. However, in the face of nearly 700,000 yuan per injection, the Yangyang family could not afford it.
In December last year, the National Medical Insurance Bureau announced that 74 new drugs were included in the medical insurance, and my country’s first imported drug for the treatment of Spinal Muscular Atrophy (SMA), Nosinagen Sodium Injection, suffered a “soul bargain” , from nearly 700,000 yuan per injection to 33,000 yuan per injection, and the new drug price will be implemented from this year, and the patient’s out-of-pocket part will be greatly reduced after being included in the new version of the medical insurance drug list and reimbursed by medical insurance, which has rekindled hope for the Yangyang family. The parents came to the hospital for the first time to apply for treatment for their children.
Due to the disease for many years, coupled with muscle weakness, muscle atrophy, and the bone structure, especially the spine, has undergone great changes, making it difficult to locate the puncture point. The Department of Neurology of the First Hospital of the Great Medical University has established a diagnosis and treatment team led by the Department of Neurology and participated in multiple disciplines, and cooperates with experts from the Department of Anesthesiology, Ultrasound, Radiology, Operating Room, and Rehabilitation Medicine to provide multidisciplinary diagnosis and treatment for patients. According to Yangyang’s actual situation, the patient’s condition and puncture site were accurately assessed, so that the intrathecal injection of “Nosinagen Sodium” was successfully completed.
It is understood that in addition to Yangyang, 5 children with spinal muscular atrophy have received treatment in our city. In addition, several patients are applying for treatment.