Qilu Net·Lightning News March 17th Xiao Li, 25 years old, from Luli Village, Chenguan Town, Guangrao County, was diagnosed with Spinal Muscular Atrophy (SMA) at the age of 15. This rare The disease can cause muscle weakness, atrophy, and even life-threatening consequences in the limbs and trunk. Xiao Li’s father, Li Baozhen, told reporters that Xiao Li was diagnosed with this disease at Qilu Hospital in Jinan at that time, but it was difficult to cure and there was no medicine. Later, he went to Beijing Tiantan Hospital, visited many traditional Chinese medicine practitioners, and went to many hospitals. The answer is that it is not good. The reporter learned that when Xiao Li was 13 years old, his condition gradually worsened. At the earliest, he could ride a bicycle. Later, it was difficult to walk slowly. Now he can stand, but it is difficult to move. It is also very inconvenient to turn over on the bed alone.
SMA-targeted therapy drug: Nosinagen Sodium
Nosinagen Sodium is in 2019 The SMA targeted therapy drugs approved for use in China have been confirmed by clinical studies, which can significantly reduce the fatality rate of SMA patients and improve the motor function of patients. However, the drug is 700,000 yuan per injection at its own expense, and requires long-term injections in the later stage. The “astronomical” cost makes ordinary families like Li Baozhen prohibitive.
In 2021, the National Medical Insurance Administration negotiates with pharmaceutical companies that Nosinagen Sodium will be included in medical insurance
2021 At the end of the year, with the efforts of the National Medical Insurance Administration, the price of Nosinagen sodium was significantly reduced to more than 30,000 yuan, and it was included in the new national medical insurance drug list on January 1, 2022. Li Baozhen was overjoyed when he heard the news. At the end of last year, Li Baozhen began to ask Dongying City People’s Hospital about the drug situation.
Zhang Wenjun, Director of Neurology Department of Dongying People’s Hospital
Zhang Wenjun, Director of Neurology Department of Dongying People’s Hospital, said , In order to get the medicine, they helped Xiao Li go through the application, approval and other procedures. After getting the medicine, he completed all the inspections on March 7. On March 8, Xiao Li received Nosinagen Sodium at Dongying People’s Hospital. Intrathecal injection therapy.
The medical staff injects Nosinagen sodium for Xiao Li
Xiao Li is observed after the injection There were no adverse reactions, and his family has taken him out of the hospital. Xiao Li is also the first adult patient in Dongying City to benefit from the drug price reduction and inclusion in Dongying City’s medical insurance. This treatment process has brought warmth and hope to Li Baozhen’s family.
Lightning reporter Wang Daijie Dongying Radio and TV Station Yang Jing Huang Yuxiang reporting