Zibo, March 1 News February 28 is the 15th International Rare Disease Day. The reporter was informed that a rare disease patient in Zibo will be reimbursed through “Zibo Qihuibao”, which will greatly reduce the burden of their treatment costs.
A year ago, Li Yi (pseudonym) was unfortunately diagnosed with Spinal Muscular Atrophy (SMA), a rare and severe autosomal recessive genetic disabling and fatal disease . With the development of the disease, the patient’s spine and bones will deform, and in severe cases, it will lead to respiratory failure and even life-threatening. The only approved treatment drug for the disease, Nosinagen Sodium Injection, will be included in the medical insurance in 2021, and the cost per injection will still be about 33,000 yuan.
Fortunately, Li Yi’s parents had insured him “Zibo Qihui Insurance”, which means that Li Yi’s follow-up special drug expenses can be reimbursed according to a certain proportion. According to reports, the upgraded version of “Zibo Qihuibao” in 2021 provides rare disease drug protection, including Li Yi’s SMA disease, adult wild-type or genetic transthyretin amyloid cardiomyopathy (ATTR-CM), chubby Willy Syndrome, mucopolysaccharidosis type I, mucopolysaccharidosis type II, mucopolysaccharidosis type IVA, homozygous familial hypercholesterolemia and other 7 kinds of rare diseases, all of which can be used according to the agreed proportion pay.
The “2022 China Rare Disease Industry Trend Observation Report” released by Frost & Sullivan and the Beijing Pain Challenge Public Welfare Foundation shows that there are currently more than 7,000 known rare diseases in the world, and patients with rare diseases worldwide have More than 300 million, of which there are nearly 20 million patients in my country. Rare diseases face three major problems: difficult to diagnose, difficult to treat, and difficult to pay. “Zibo Qihuibao” is an urban inclusive medical insurance tailored for Zibo citizens. For the first time in the upgraded version of product liability in 2021, special drugs for rare diseases are included in the guarantee. It can cover a wider range of rare disease patients, greatly improve the availability of rare disease drugs, make up for the drug problems of rare disease patients to a certain extent, and provide solutions for solving the medical cost burden of rare disease populations. new ideas.
The cost of the upgraded version of “Zibo Qihuibao” is only 149 yuan, including 2 million yuan insured medical insurance and 100,000 yuan insured rare disease drug protection, and is not limited to physical conditions, and pre-existing conditions can also be insured pay. As the operating platform of “Zibo Qihuibao 2021”, Shuidi Company will launch a special public welfare fund for critical illness relief to provide public welfare assistance for critically ill patients after claim settlement of “Zibo Qihuibao”, focusing on rare disease patients, and cooperate with pharmaceutical companies, insurance companies and other partners to provide special Pharmacy and other medical resources.
Dazhong Daily Zibo Rong Media Center reporter Liu Wensi Correspondent Li Weihui