Documentary: Accompanying my father’s cancer-fighting days

Author: I like you Mi Dao 2018

This article is from“ Tianya Hospital”sectionOriginal title: Conservative treatment of lung cancer, records and the days of my father fighting cancer

Thanks to the author for providing high-quality original content for Tianya

Father is a small time He is a superman, invincible and omnipotent;

When he grows up, his father is a tree and a sea, sheltering from wind and rain, tolerant and deep.

The one who is reserved, restrained, and unspeakable is the father;

I thought that my father was a tall and tall pine and cypress, but

I never thought that “cancer” was coming!

After my mother passed away, I went home once a week. At the end of March, my father said that he was dizzy, so I took him to the emergency room and was hospitalized for examination.

Since I got the inspection report on April 3rd, I have lived a life of ignorance.

The one-bed patient was pulled away, and the father’s heart developed atrial fibrillation and shortness of breath. The doctor gave him a dynamic electrocardiogram and chest CT, examination results, consider the tumor.

Tumor, what a terrible word, why is it my father? My home again?

April 4-6, Qingming Festival. On April 4th, the doctor suggested that I go to Anhui Provincial Chest Hospital for diagnosis. The bronchoscope in their hospital is the best in Anhui Province. I wanted to go to another province, so I decided to go to Nanjing. On the 6th, after my father finished hanging water for the day, I told him that I was going to work in the unit and brought my father’s CT film. My husband put me on the train to Nanjing.

At about 1:30 in Nanjing, I went directly to the Drum Tower Hospital. Because of the epidemic, the iron door of the outpatient clinic was closed, and the emergency department was not allowed to enter. I had no choice. I went to the Nanjing Military Region General Hospital, which is more strict. I didn’t see a doctor. I had to take my temperature wherever I went. I stayed in Nanjing for one night. On April 7, I made an appointment with two doctors, Dr. Wang Tao from the Department of Thoracic Surgery of the Drum Tower Hospital in the morning, and Dr. Yu Zhenghong from the Department of Oncology of the Military Region Hospital in the afternoon. The opinion given by Dr. Wang is that in the middle of the start, I cannot operate. I am surprised. This is the first doctor to tell me bad news. I am not ready, and I am still in shock.In the Drum Tower The outpatient department of the hospital turned around a few times, but couldn’t get out. Doctor Yu said that the film was not very good, so I was treated at my home hospital. If I come to Nanjing, I need a nucleic acid test report. The military hospital has a tight bed space, and there are many people waiting for nucleic acid in front of me. The people in the queue are quarantined and wait on time every day. Doing nucleic acid tests and investigations, the hope here is dashed, The new crown has made me lose a lot of ways to come to my favorite city, do the things I dislike the most, and get the most unacceptable results.

Back in Tongling, it was 7:30 pm and went straight to Dad’s ward. Daddy washed up, I said “naturally”, I’m leaving~ Daddy said, you can leave if you want to go, and you can take photos if you don’t go and sit down. Daddy is reluctant to let me go, so I will stay for a while.

On the morning of the 8th, Dr. Tan went to work. I told her that the diagnosis was confirmed locally. The doctor of respiratory medicine again suggested that we go to the thoracic department, because the location of the tumor was not good. Tongling The puncture may fail, so I immediately decided to transfer to the provincial capital for a bronchoscopy.

On the 9th, we arrived in Hefei one day earlier, and the number of Director Fang of the Chest Hospital was hung up one day earlier. We were very lucky, and we moved in when we came, and we performed various examinations and arranged Had a bronchoscopy on Monday.

On the 10th, I began to consider my father’s treatment plan and had an enhanced CT. I found the attending doctor, Dr. Cai, and she prepared me for the possibility of a malignant tumor.

On the 11th, the enhanced CT report came out, and I found Director Fang to discuss the treatment plan. Director Fang said that this location can be operated and will try to ensure the lung tissue, but it is also possible that after the thoracic cavity is opened, Need to ensure the effect of treatment, may also do a total right lung resection, the quality of life may be very poor, the family has emphysema, I can imagine him living with one lung, out of breath and resentful eyes, I’m scared, I hope my dad is happy and healthy with me for a few more years.

On the 12th, my father’s blood test results came out, the protein level was low, the doctor suggested human albumin, transpeptide Enzyme value decreased from 1053 to 327.

On the 13th, the mysterious bronchoscope debuted, the lumen was clean, and no tissue was retrieved, which means the bronchoscope failed , my attending doctor, Dr. Cai, immediately gave me a list of lung puncture, made an appointment for lung puncture, and found Director Fang again to study the treatment plan: this tumor should be malignant, he suggested to do petct first to see if the tumor has spread, if not, then Surgical treatment, or conservative treatment, there are many methods of conservative treatment, and the plan is determined after needle biopsy.

On the 14th, I made an appointment for petct, and the protein hung up the next day.

On the 15th, a petct was performed in the Second Affiliated Hospital of Anhui Medical College, and a suspected spot was found in the small intestine. The doctor judged that it was not a metastasis, but a primary tumor, and organized Director Liu of the Department of Oncology. Consultation, try to perform surgery, preserve a little more lung tissue, and possibly remove the whole lung. I thought the situation was already very bad, but I didn’t expect it to be even worse. Director Liu did not introduce the treatment plan for the small intestine, and once again got into trouble ,confused.

On the 16th, after the doctor’s morning meeting, I found the attending doctor, Dr. Cai, and I asked her how to solve the problem of the small intestine? A knife in the chest, a knife in the abdomen? Can the patient’s body take it? She asked me to go to the Ancillary Hospital for a bowel examinationmirror. I registered on the Internet and went to the safety doctor. Oh my god, it takes a month for the outpatient colonoscopy. God, is it hopeless, let Dad go. There was no way to go, so I sent a text message to my uncle for help. In the evening, my uncle sent me a message, and he didn’t have a doctor he knew well.

On the 17th, in the early morning, my uncle called and asked someone to find the Ming doctor of Anyi, and there was a bed, kneeling and praying. Dad was lucky. Discharged from the Chest Hospital, ready to be transferred to the Anhui Hospital. In exchange for a moment of good mood, I took my father to Xiaoyaojin in the afternoon to have a look. He always felt that Xiaoyaojin was not as good as a botanical garden, haha!

On the 18th, he was admitted to the Affiliated Hospital of Anhui Medical College, and the doctor arranged an electrocardiogram and CT review.

On April 27th, she was an internet celebrity nurse Zhou Guohong who went to Wuhan to fight the epidemic this year, because her child’s ideal school was Wuhan University, and the president of Wuhan University used to be in the air. Shoutout, I hope her child can become a member of Wuhan University. Yesterday, I met her in the elevator, has been changed to a patient, thyroid cancer, and, has metastasized. Tumor gentleman, please raise your hand and let go of kind people!

April 28th, every day, I wake up at three o’clock, and wake up again at about four-thirty. What awaits is boundless fear and heart-wrenching helplessness. What is the length of the small intestine? When will the diagnosis be made? Or tumor gentleman, you grow slowly, grow slowly… Wait for the examination of the small intestine, so that my father suffers less.

Tomorrow is the last surgery day before Director Zhang’s festival. If you don’t have surgery, you will continue to wait. It will take more than 10 days to diagnose the small intestine after May 1. Tumor Jun , will you still wait for me?

Unfortunately, Mr. Tumor, you can’t speak. I am so scared that there is no right answer.

On April 30, the CT report showed that there was no obvious abnormality in the small intestine. This should be comforting news. Yesterday, I went to see Director Song of the Department of Gastroenterology for consultation. I can do a small colonoscopy, but it is not guaranteed to be “bad”. In addition, I can do a B-ultrasound, which shows no obvious abnormality. If the disease comes to me, I will not seek the disease and concentrate on treating the lungs.

May 1st, at noon yesterday, my aunt called and said that lung surgery could not be done, and whether it could be treated conservatively. Aunt, uncle, and sister all expressed conservative treatment. Am I wrong?

I am confused again.

On May 2, the bone density was uneven. I didn’t do this before. Is it bone metastasis? Worse, procrastination and procrastination, God, what can I do!

May 2nd, I’m not afraid anymore, , I’m afraid of my own ndecision to cause unnecessary pain to Dad. The puncture was performed in Tongling, but the doctor said it could not be done, so we went to Hefei for bronchoscopy, but we did not do it. We did petct to see if there was any spread. Small bowel, finally, small bowel CT showed small bowel diverticulum, no tumor can be done, rest assured to treat the lung. The last CT examination before the operation today, CT showed uneven bone density, and then a bone scan was performed, and CT suspected bone metastasis, What can I do to save you, my dad.

On May 4th, the originally planned operation on the 6th was cancelled. The last CT before the operation showed: sternum and part of the bone The density is not uniform and the bone may have. Director Zhang suggested transferring to the Department of Medical Oncology for conservative treatment.

Yesterday I was still thinking, another patient went home, they went home happily, maybe, 10 days later, I can also Going home happily, but what is waiting for me?

After 10 days, my dad’s surgery is almost recovering, and we are about to be discharged. I want to Quietly waiting for Dad’s recovery, then removing the stitches, then reexamination, and then waiting for the doctor’s judgment, radiotherapy and chemotherapy. Small intestines, and small intestines, what the heck are you, you’re a ticking time bomb, get out of here!

May 5th, I slept very early last night, I seem to have depression, I cry every day, and I stop crying I still can’t do anything, I’m sad about everything, have no interest in anything, and I can’t see the beautiful things in other people’s circles of friends. It’s very exciting to me. Now I’m awake, I don’t know when I can fall asleep.

May 6th, this month, for a month, I never believed that my father was sick – not reconciled Treatment options – Compromise surgery – Inability to undergo surgery for medical reasons – Conservative treatment.

When I first learned about this disease, I felt that my father was about to leave me, and the guilt and guilt in my heart were pressing right into my heart. If he was brought to my house during the new crown, if Dad had a better temper, if Dad didn’t drink so much alcohol, if… no if, only reality, Dad has cancer, and the treatment is very troublesome, and it is said locally that puncture can’t be done , went to the chest hospital for bronchoscopy, the bronchoscopy failed, the petct examination was on the small intestine, and the hospital was transferred to An Yi for small bowel examination.

After a month, I returned to the starting point.

On May 7th, he was transferred to the medical oncology department. During the day = waiting, it is too difficult to get the pathology.

Should I take my package and leave with my dad?, leave the hospital, leave this suffocating place, and when the disease breaks out, we will treat it with pneumonia, at least, with less pain (this idea is too terrible, and this idea should be closed quickly).

Every day, I look forward to the dark, there will be no inspection after dark, no inspection is safe, at least, my father has no serious symptoms.

On May 8th, the sky was bright again, and the wait was endless. Dad began to swell again. I know, yes The cause of the tumor, when can it be treated, I am anxious. The doctor in the Department of Respiratory Medicine, did you have a doctor’s order? He said that the speed of the big hospital is too slow. (This method varies from person to person)

May 9th, it’s six o’clock now, it’s dawn, I wake up at three o’clock, there is a fire truck outside The oncology department is on the top floor, and the obstetrics and gynecology department is relatively low, and it is a choice between life and death.

Think about it, it’s better, read the articles on Tianya, and pass the time. It’s just that my sleep still needs to be adjusted, and I can’t collapse.

Today, my father had an ultrasound bronchoscope, hoping to find out the pathology as soon as possible.

May 10th, yesterday, was a relatively good progress, the ebus bronchoscope did Tumor, the next step is to wait for the biopsy report. EBUS bronchoscopy biopsy, poked three needles, and after three days of waiting, it is biased towards squamous cell carcinoma. The best way for squamous cell carcinoma is chemotherapy. Guilty, I lied to my father for chemotherapy. He trusted me so much and never doubted what I said. This time, I lied to him and lied to him for chemotherapy, and his health would deteriorate little by little.

On May 14th, the chemotherapy drug was paclitaxel + carboplatin, which was better than I thought The simple, a total of four bottles of water: sodium chloride, paclitaxel, carboplatin, sodium chloride. I took antiemetics in advance, but there was no reaction. I could eat, drink, sleep, and exercise. I know, just the calm before the storm. I will be discharged from the hospital tomorrow.

On May 15th, I was discharged from the hospital today. We were all in a good mood. Dad was groaning in his heart. After the inspection took so long, he would hang up for two days? We told him that we would come back for a re-examination after 21 days. Every meal has antiemetics, no vomiting symptoms. The patient in the adjacent bed said that some people started to respond on the third day, and some people started to respond for the third time.

I haven’t been at home for more than a month. My third aunt helped us clean the room in advance. It was very clean and comfortable. For the first time in many months, I was full (I couldn’t eat it all the time), there was old duck soup, and my father drank 3 bowls.

I moved back to my family, a familiar and unfamiliar home, and stayed with my father. I haven’t lived at home for a long time, and many things at home are not easy to use.

On May 16th, as usual, I woke up at 2:48 in the middle of the night and waited for dawn. Dad got up at 5:30, he got up, I got up, and there was a lot of housework to do.

My father said that I couldn’t drink the duck soup yesterday. I had gout pain. (Here I also want to ask netizens if the stewed soup is high in purine and will cause gout. I am worried that I will make a mistake in my judgment)

After breakfast, bring the prepared I went to buy vegetables according to the strategy: loach, pig’s forefoot, red beans, red peanuts, red dates, and also bought Ejiao to make Ejiao cake, protein powder. Almost enough for a few days.

I have one more important thing to do today, go to work. I went to my boss to talk to see if I could not work and work online. After all, I still have to live. When the boss was not there, I told the boss. He said that he came to the boss several times a week to get the information and come back to do it. Let’s wait for the arrangement~

Come back at 10:30. Dad was lying on the bed. He said he was hungry when he didn’t take medicine, and he said he didn’t want to eat today. No matter, I make it first, two people can’t eat much.

Dad came into the kitchen smelling the aroma of rice at noon. It was okay, so he ate a bowl of rice.

In the evening, my husband and son came and added two dishes (no photos were taken), and my father ate a bowl, but he still had no energy, his eyelids were drooping, and his legs were swollen Yeah, I’m so sad. Take an ibuprofen and tell him to eat it if it hurts.

Dad got up at 5:30 this morning and went out for a walk. strength. After I got up, I heated up the Wuhong soup, added some donkey-hide gelatin and protein powder to Dad’s portion, and ate another steamed bun. Black wolfberry + astragalus + red dates are soaked in the cup, no American ginseng is added, and American ginseng should be avoided.

It’s gone. I’ll check my eyes on Thursday with blood tests. I have done too much CT this time. I don’t know if it was affected by radiation. What did we do wrong to punish Dad like this.

Today is the fifth day of my discharge from the hospital. I feel lonely. I really hope that someone will come to see my father, or, come and see me and accompany us, chat. I am afraid of being alone.

Written at half past four in the morning.

I have a sick meal with my father, I quit, I want to eat pickles, I will have big steamed buns, and I will have the strength to work after eating .

I had a dream that after giving birth to a child on the street, After the child’s physical examination, he said that he could only live until the end of the year. told her husband the news. In the dream, he pretended to be calm and denied it.

Dad said that his eyes are not getting better every day, so I took him to see his eyes today, and he already had three mental preparations in his heart: CT radiation, brain transfer , cataracts (this is an old problem). In any case, understand it in your heart.

Oh, by the way, my father’s chemotherapy response was much better, and he stopped taking ibuprofen the night before. I have a good appetite, but I have no energy. I get up and shake, lie down again, and the day goes by. If my father can maintain such a physical condition, I am willing to serve him all the time.

Say something weird.

In mid-March this year, my father insisted that I take him to visit the grave during Qingming Festival. He said, he doesn’t know if he can go next year. At that time, my father had symptoms of not being able to eat, and he hadn’t been checked into the hospital yet.

The ophthalmologist said that my father’s cataract is full. If the fundus is good, surgery can be done. B-ultrasound is scheduled for tomorrow morning.Waiting for the result…

Going to the hospital in the morning, it was too late for lunch.

Take the ready-made pig’s trotter soup + rice noodles + tomatoes + mushrooms stewed at home, and have a messy stew. Dad ate it very deliciously, and after eating, he brought some snacks ( Ejiao cake three small pieces). Dad went out to hang out after eating, come back at twelve o’clock, and go for lunch break.

I also slept for a while. Last night, I had a nightmare. At 1:30, I got up and turned on the computer to work. I should have ordered it at the company today, I was lazy, I told myself, I won’t go today, I will work at home, the same thing~

At 3:30, I remember that there are no vegetables at home Now, I went to the market to stock up again, and I will go to the hospital for an ultrasound tomorrow morning.

The evening meal is relatively vegetarian, fried water spinach with chili, cabbage and egg soup, a small portion of frozen pork skin, lettuce + shiitake mushroom + yam + sliced ​​meat (for two people, you can only use this It’s a messy stew, more varieties), the dishes are not good-looking, and the taste is not bad. Dad ate two dishes by himself, haha.

My father was discharged from the hospital. On the seventh day today, he passed the chemotherapy reaction.

Dad entered the room at six o’clock last night, but he still had no energy. I don’t want to disturb him, I entered the room at 8 o’clock, I couldn’t hold it at 9 o’clock, I was sleepy! My condition is much better than before, I can sleep for seven hours, plus noon, a total of eight hours, which is enough for international standards.

My house is full of old factory workers, basically the elderly. Young people have all moved out. At night, the street lights are dozing off.

B-out of the eye is coming — cataract, which can be treated surgically. In the afternoon, I went to open a hospitalization order and strive for an early operation. Bad eyes, not to mention quality of life.

blood biochemical report.

Before admission to the hospital, my father drank twice a day, a total of 6 taels, which may have ruined his health. He only started to stop drinking when he went to the hospital for examination. Now his index is much better. Now, the γ-transpeptidase was 20 times higher than the normal index, and I was afraid after thinking about it.

I ate loach last night, my dad asked for more Chili, a bit against the doctor’s orders, I thought, as long as my father is willing to eat it, it is better than not eating it.

This morning, Wuhong soup + donkey-hide gelatin + protein powder, and most of the steamed buns. I’ll go to the company in a while, and I have something to deal with.

This visit to the provincial capital is very insightful. The two most important things when you are sick and hospitalized are love and money.

A family from Hefei. The old man is 65 years old and the same age as my father. The old man participated in the self-defense counterattack in his early years. There are four children in the family, the youngest child is a boy. The old man was hospitalized for eight days after the operation, and each child and his wife took turns to serve and deliver meals. Each child took almost two days, without delaying their work and life. The core of family cohesion is strongview and envies others. This time my father was sick. If it was just me and my husband, the local diagnosis could not be made, and my father’s illness would have to wait until he died.

I really want to thank many people, my parents-in-law help me take care of my children’s life, I can say something I didn’t worry about it. My child took online classes, and homework was a problem. The mother of my classmate took the child to her home. Every day, the two children took online classes together, did homework, and took care of a meal every day (this is voluntary and free); My child’s aunt, they have two children in their own family, and Erbao is still very young. They brought my child to her house on weekends. It was delicious and delicious, and the key was to help me with my homework. Their help to me allowed me to concentrate. Healing with Dad. My two cousins, my third aunt, and my father were hospitalized in Hefei. They ran between the two places several times and gave me psychological counseling. Yes, help me, help me with ideas. Many times I have to cooperate and hide from my father. My grandmother, who is 90 years old, made a special trip to Hefei to visit my sick father. There are many, many people, relatives, friends, and patients who have a fate these days. I am very grateful to them. .

▼Wonderful Review of Past Issues▼After four years of Ph.D., people will not be confused and in a dilemmaTell me about my experience of buying a house. I have always been lucky in buying a house. There are all kinds of tricks in the house, where are the magical plants?

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