More than 1/3 of clinical trials focus on rare diseases
From available medicines to affordable medicines
Which insurance “works”
February 28 Today is the 15th International Rare Disease Day. According to statistics, the number of rare disease patients worldwide has exceeded 300 million, and there are approximately 20 million patients in my country. At present, difficult diagnosis and treatment are still the dilemmas faced by rare disease patients, and the research and development of rare disease drugs is even more difficult than general innovative drugs for a small audience. In 2021, “700,000 yuan per injection” of rare disease drugs will be included in medical insurance, and the call that “every small group should not be abandoned” has brought this group of attention again. With the participation of more organizations such as medical insurance bureaus, drug regulatory departments, and pharmaceutical companies, the availability of drugs for rare diseases will be further expanded. (see 2nd edition)