87-day-old baby girl’s heart is 3 times larger than her peers, post-90s anti-epidemic mother asks for help across provinces

Elephant News reporter Wu Ziyi

On January 30, 2022, Xiaofang, a post-90s anti-epidemic nurse in Zhengzhou, gave birth to a pair of twin daughters. But when the child was just one month old, Xiaofang found that the eldest daughter, Anan, had symptoms such as shortness of breath, hoarseness, and white bubbles in the mouth. After Xiaofang sent her eldest daughter to the hospital, she was diagnosed with congenital heart disease and severe pneumonia.

An An, who should have grown up under the care of her mother, was admitted to the hospital with severe illness ICU. In order to continue An An’s life, the family spent all their savings. During this period, many people had persuaded Xiaofang to give up treatment, but she resolutely refused and chose to find hope for her daughter in major well-known hospitals across the country.

April 24th, after a netizen learned about An’an’s condition, he was a child. Fang recommended Qilu Children’s Hospital of Shandong University, which has a professional medical team for treating An’an disease. After many communications with the hospital, Xiaofang finally decided to set off from Zhengzhou at 9:00 a.m. on April 27 and go to Shandong for treatment for An’an.

To be admitted to the ICU after the full moon and to live on a ventilator

can have a pair of Twins have always been Xiaofang’s dream. After the birth of the child, Xiaofang, who is happy in her heart, returned to her hometown of Puyang for confinement. When the twin sisters were about 20 days old, Xiaofang found that her eldest daughter, An An, sometimes had rapid breathing and gasped every time she finished breastfeeding. “Looking at how tired she looks every time she finishes eating.”

As a nurse, Xiaofang knows that babies breathe faster than adults under normal circumstances, so she doesn’t take An An’s symptoms to heart. 10 days later, An An’s full moon, Xiaofang suddenly found that An An’s crying was very hoarse, and she even spit white bubbles at the mouth, and her breathing became more rapid. Xiaofang quickly took An An to Puyang Oilfield Hospital for treatment.

“Why did you bring the child here now.” The doctor’s words made the little boy Fang realizes that An An’s condition has deteriorated. Newborns under one year old normally breathe about 40 times per minute, while An An’s breaths per minute are as high as 90 times per minute. Every time she breathes, An An’s intercostal space and supraclavicular fossa have serious depressions. The diagnosis shows that An An has ventricular septal defect, atrial septal defect, and bronchopneumonia. She was urgently transferred to the intensive care unit.

After 15 days of supportive treatment such as anti-inflammatory drugs, bacterial culture and blood transfusion, An An’s condition has not improved significantly. On March 21, Xiaofang took An An to the He Hospital District of the First Affiliated Hospital of Zhengzhou University. With further examination, An An was finally diagnosed with “congenital heart disease, severe pneumonia, and multiple tracheal stenosis”, and she could only rely on a ventilator in the intensive care unit to prolong her life every day.

Xiaofang told the Elephant News reporter that the hospital examination results showed that An An’s heart A normal child of the same age was 3 times bigger and had completely covered her left lung and compressed the left bronchus. In order not to increase the burden on An An’s body, An An, who was nearly 3 months old, reduced the amount of milk she fed from 50 ml to 20 ml per meal. Compared with her younger sister Yiyi, who was born at the same time, An An’s weight is half lighter.

The daily medical expenses are tens of thousands of yuan, and the mother never thought of giving up treatment

During the new crown epidemic in 2020, Xiaofang, as a post-90s nurse, took the initiative to write a petition, “If the hospital has plans to support fever clinics or out-of-hospital aid, please give me priority, and I will definitely live up to my mission!” For her daughter, Xiaofang blamed herself very much, “If I had paid more attention to her abnormal situation earlier, perhaps An An would not have suffered so much grievance.”

Xiaofang told the Elephant News reporter that because An An’s weight was not up to standard and her age was too young, the hospital could not perform surgery. An An always relies on a non-invasive ventilator to maintain her life. Treatment costs ranging from as little as 3,000 yuan to tens of thousands of yuan per day have already emptied this poor family. During the hospitalization, the doctor learned from the conversation with Xiaofang that Xiaofang’s eldest daughter is 3 years old this year, and the youngest daughter Yiyi, who was born 3 minutes later than An’an, is also growing up healthy. The doctor repeatedly suggested that Xiaofang consider giving up treatment and focus more on the other two children.

Xiao Fang could not accept giving up the treatment of An An, and stayed with her husband 24 hours a day ICU door. “Although I haven’t seen my daughter for more than a month, I believe that mother and daughter are connected. An An should be able to feel that we have never given up and have been with her.”

Xiaofang and her husband have slept in front of the intensive care unit for 36 days. Through her personal social account, she records every dayRecord what I want to say to my daughter and various interesting things that happen every day, “I want to use this method to cheer for An An and give myself the confidence to persevere.”

Xiaofang’s video has attracted the attention of thousands of netizens not long after it was released. One of the netizens, Ms. Zhang’s child, had the same disease as An An. She privately wrote Xiaofang to recommend Qilu Children’s Hospital of Shandong University, “She said that her child was cured in this hospital.”

It is understood that in 2009, Director Meng Chen of Qilu Children’s Hospital of Shandong University established the first respiratory interventional department in China’s pediatrics department. . It was the earliest in the treatment of congenital tracheal stenosis by implanting stents in the trachea, in the treatment of various tracheal problems such as granulation hyperplasia, scar stenosis, contracture, softening and collapse of the trachea, in the diagnosis and treatment of severe pneumonia, atelectasis, and wheezing diseases. Rich experience of success.

Xiao Fang understands the local epidemic prevention and control policies of Qilu Children’s Hospital of Shandong University, Contact the transfer vehicle, and at 9:00 am on April 27, I will take my daughter An An across more than 400 kilometers to Shandong for further treatment. “I hope my daughter can be as safe as the name I gave her.”